Well here we are again asking for prayers for Bryce. I took him to the doctor today because he isn't gaining weight. When we first started this journey with EGE he weighed 50 lbs. now he weighs 45 lbs. 6 year olds shouldn't be losing weight like that. He also keeps diarrhea ( one day he's gonna hate me for posting that one). He tends to come home at least once a week that he hasn't eaten anything all day his lunch box still intact. He seems to have almost a fear of eating. Dr. Nabors is very concerned about him which is comforting to know that we have a Dr. that cares and worries. She told me that we would not be going back to Lebonheur (thank goodness that place is terrible). She is gonna do some homework and she mentioned sending us to either Birmingham or Little Rock. I told her that I would go wherever we needed to go to get my baby taken care of. We are going to have a cystic fibrosis test done tomorrow just to make sure that he doesn't have it. CF is a disease that affects the lungs (he has major respiratory issues) and also causes malabsorption (he's got that too). I hope that CF is not a diagnosis for him because there is not a great life span. This would also mean that if Eric and I were to have any more children that that child would most definitely have CF also. Please pray that this is not the case and that the doctors can find what is ailing my sweet boy. Most people wouldn't notice that he's a sick kid, but I see him getting worse and worse right before my eyes. It is heartbreaking to see such a special kid going through everything that he has had to go through. I know God definitely put him on this earth for a reason. Well I can't type anymore or I'll breakdown and go into hysterics. Please pray for Bryce and our family as we are going through this time.
1 year ago
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